May I rant? Of couse I can. It is my blog. You don't have to read it!
1) very few people have the stamina to be in it for the long haul. Stroke recovery isn't days or weeks or even months. It will take years. I have one good friend, whom I think must be nuts, that is sticking through all of this mess and still helping me. She seems more stubborn than I am!
2) My hubby's job is more important than I even thought. My hubby is a radiologist. Nothing, and I mean nothing, was done while I was at the hospital without consulting radiology. I had multiple CT scans, daily X-rays, and several swallow studies. The radiologist even controlled if I could or couldn't have puréed food. Solids were several studies later. The CT scanner went down at hubby's hospital. The ER had to divert trauma patients to the civilian hospital because they had no way to diagnose them. I can't tell you how many times I have heard him on the phone fighting for unknown patients because other clinicians want to irradiate them wrongly. I really love my hubby. He carries quite a load as chief. His job really does center everything at the hospital.
3) people mean well, but they have lives too and often just forget what they said they will do. Do not count on anything and consider yourself lucky if something does happen.
4) kids just want you to play. Before the strokes, I was a busy girl. I've learned that messy houses come second to sitting on the floor and actually playing with my kids. There was a time when I had to beg friends to play with my kids because I couldn't. I did not care if the house was clean. I just wanted them played with.
5) there are crafts you can do one handed. It has taken lots of trial and error, but I have finally found crafts I can do. I have taught myself how to loom knit, albeit slower than snot, by grasping the loom in my right hand and using my left to knit.
Sorry, just some random thoughts I had today.